Project Description

TAGNZ Conference 2025

TAGNZ is holding our Biennial Conference! Registration is NOW OPEN!

  • It starts at 9am on Saturday 18 and finishes at lunch time on Sunday 19 January, 2025.
  • The Venue is at Woodstock School, Hamilton.
  • All meals provided except breakfasts.

Board Application

  • As one of our Board member is stepping down next year, we are looking to elect a new board member for 2025.
  • The Constitution requires the Board to appoint a replacement for any vacancy. Following discussion, the Board decided to call for expressions of interest from the membership and the Board would then choose a replacement from those who have put their names forward.
  • The Board meets for an hour approximately once a month by Zoom and has a once a year face to face weekend planning meeting. Members need to be available for these meetings.
  • TAG is a registered charitable trust. This means that the responsibilities and liabilities of Board members are governed by the Charities Act.
  • More information about the role of a Board member is detailed in the TAG constitution.

In making application to become a Board member, please provide a short outline of the skills, experience and qualifications you would bring to the Board. Email your application to info@tagnz.org.nz

Applications to become a Board member will close on Sunday 8 December and the successful applicant will be advised before the AGM in January. If you are interested in applying to be a Board member and want to find out more about what is involved please email us info@tagnz.org.nz

Speaker line-ups

Checkout the biography of our speakers below:

Misha Dream Walker is the esteemed International Ambassador for Arthrogryposis Multiplex Congenita (AMC), a passionate advocate dedicated to raising awareness and promoting inclusivity for those living with this rare condition.
Misha’s impactful work spans across countries, connecting communities and fostering support for individuals and families affected by AMC. With a commitment to empowering others and driving meaningful change, Misha’s advocacy combines personal experience with a global vision for a more accessible and understanding world.
Misha joins us to share their inspiring story and the strides being made for greater awareness and inclusion.
Sir Ian Taylor is a pioneering figure in New Zealand’s technology industry, renowned for his groundbreaking work in digital innovation and storytelling. Founder of the award-winning company Animation Research Ltd, Sir Ian has been at the forefront of creating world-class 3D graphics and simulation technology, revolutionizing fields from sports broadcasting to marine navigation. His vision and leadership have placed New Zealand firmly on the global tech map.
At the conference, Sir Ian will share his insights on the immense opportunities within the tech industry, particularly focusing on how we can create a more inclusive and accessible future for people with disabilities.

Therese Willkomm is an innovative and dynamic occupational therapist specializing in assistive technology solutions. Renowned for her creativity and practical approach, Therese has authored three books packed with do-it-yourself adaptive solutions that can be made at home, empowering individuals to enhance their independence and quality of life. Her engaging and energetic style makes learning both fun and impactful.

We had the pleasure of meeting Therese at the AMCI conference in Ohio, and we are thrilled to have her here to share her wealth of ideas. Be sure to bring along any challenges you need help with—Therese is ready to problem-solve and inspire!

John Irwin, the publisher of Against the Odds, is an inspiring figure whose life embodies resilience, determination, and kindness. Known for his quiet strength and humble nature, John has overcome significant challenges, channelling his grit into meaningful pursuits that inspire those around him. His character is a powerful blend of drive and humility, motivating him to achieve his goals while remaining grounded and compassionate.

At the conference, John will join us to share his journey, reflecting on the lessons learned through his experiences and the values that have guided him along the way.

Hayley and Poppy are coming to talk to us about their road of discovery, this rare disorder, now identified in three AMC children in New Zealand, can lead to joint contractures, muscle weakness, and a range of physical and neurological challenges.
Poppy is one of New Zealand’s young children living with ZARD, a genetic condition caused by mutations in the ZC4H2 gene, which affects the development and function of the nervous and muscular systems.
Thanks to advancements in genetic testing, ZC4H2 has recently been added to the AMC testing panel, allowing for earlier diagnoses. Poppy’s story has even helped make critical connections within the medical community, as her doctor identified another girl in Christchurch who, upon testing, was found to share the same gene mutation but with greater functional ability. Poppy’s journey underscores the importance of continued research, awareness, and support for families affected by this rare disorder.

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